Oxford Textbook of Palliative Care for Children (2nd edition)

Ann Goldman; Richard Hain; Stephen Liben
Oxford Textbooks In Palliative Medicine

The first edition of this book was the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care. It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on the knowledge that all human experience has a physical, emotional, psychological and spiritual impact. The book covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach. The Oxford Textbook of Palliative Care for Children is about the care of children for whom cure of their underlying disease is not possible. It encompasses the physical management of symptoms such as pain and nausea, as well as social issues such as accessing appropriate education, emotional issues such as techniques for communication, and spiritual issues such as feelings of guilt and isolation. The book suggests that if we are to maintain the quality of life for a child it is essential to recognise all these dimensions and try to address them. This can only be done by recognising the skills of a wide range of professionals and working together in ways that are not always intuitive to any one discipline. It explores the multidimensional and holistic nature of care for the dying child. Those working in paediatric palliative care recognise that all human experience has emotional, psychological and spiritual impact as well as physical, and this book offers the essential information needed for those involved in paediatric care to find ways of providing support in all of these areas. Comprehensive in scope, exhaustive in detail, and definitive in authority, this second edition has been thoroughly updated to cover new practices, current epidemiological data and the evolving models that support the delivery of palliative medicine to children. Paediatric palliative care is now developing in countries with differing health care systems, and being adapted to suit individual illnesses and the varying resources and geography in different parts of the world. This book is an essential resource for anyone who works with children worldwide.


1. History and epidemiology
2. The child's journey: Transition from health to ill-health
3. Communication
4. Ethics
5. Through the creative lens of the artist: Society's perceptions of death in children
6. The power of their voices: assessing the child and family
7. Children's views of death
8. The psychological impact of life-limiting conditions on the child
9. Adolescents and young adults
10. Children expressing themselves
11. Education and school
12. Impact on the family
13. Spirituality and meaning in children, families, and clinicians
14. Around the time of death - culture, religion and ritual
15. Bereavement
16. Symptoms in life-threatening illness: overview and assessment
17. Using medications in children
18. Introduction to pain
19. Pain assessment
20. Pharmacological approaches to pain: 'By the ladder' - the WHO approach to management of pain in palliative care
21. Pharmacological approaches to pain: Simple analgesics and opioids
22. Pain: Adjuvants for neuropathic and bone pain
23. Pain: An integrative approach
24. Management of the gastro-intestinal tract in paediatric palliative medicine
25. Feeding in palliative care
26. Neurological and neuromuscular conditions and symptoms
27. Depression, anxiety, and delirium
28. Respiratory symptoms
29. Skin symptoms
30. Haematological symptoms
31. Palliative care for children with hiv/aids
32. Care in the final hours and days
33. Integrative medicine in paediatric palliative care
34. Place of care
35. Intensive care units
36. The good-enough health care provider
37. Education
38. Quality improvement
39. Research in paediatric palliative care
40. International aspects


Ann Goldman, Consultant in Paediatric Palliative Care, Great Ormond Street Hospital, London, UK; Richard Hain, Lead Clinician, Welsh Paediatric Palliative Medicine Managed Clinical Network Visiting Professor, University of Glamorgan, UK, and Honorary Senior Lecturer, Bangor University, UK; Stephen Liben, Director, Palliative Care Program, The Montreal Children's Hospital, Canada