Malignant: Medical Ethicists Confront Cancer

ISBN : 9780199757848

Rebecca Dresser
264 Pages
160 x 237 mm
Pub date
Mar 2012
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'You have cancer.' Words no one wants to hear, but heard by millions every year. Millions more hear the equally shattering news that a loved one has cancer. Both are life-changing messages. For the people writing this book, cancer was not only a personal crisis, it was also an education. Experts on medical ethics, personal experience with cancer showed them how little they understood of the real world of serious illness. Despite years of teaching and writing about treatment decision-making and patient autonomy, they were unprepared for many of the problems they faced. They discovered that the rights and wrongs of cancer care were more complicated than they had anticipated. Ethics outside the hospital walls took on unexpected significance as they discovered the astonishing generosity, and the unintentional cruelty, that cancer provokes in others. Cancer was a test of personal character, too, as patients accustomed to control became dependent on others and caregivers shouldered unfamiliar and difficult responsibilities. In chapters on cancer diagnosis, treatment choices, and research participation, the authors examine medical ethics from the personal point of view. In chapters on family caregiving, cancer interactions, and cancer support groups, they consider ethics outside the medical setting. In chapters on mortality and survivorship, they reflect on cancer's personal moral teachings. Cancer is an unavoidable feature of modern life. Readers will come away with a deeper understanding of what it is like to have cancer, better equipped to respond to cancer in their own lives and the lives of others. The book also offers insights to doctors and nurses seeking to improve cancer treatment and to medical ethicists seeking to make their work more relevant to patients and caregivers. "Rebecca Dresser's idea for a book on cancer was an inspired one. In bringing together a group of people from the field of bioethics with personal experience of cancer, as survivors or caretakers, we see in moving detail what it is like to wrestle with the disease. It will offer those with cancer or caring for those with it uncommon insight and wisdom. If one has to think about or deal with the disease, one can hardly ask for more."- Dan Callahan, The Hastings Center


1 Crash Course 1
Rebecca Dresser
2 Diagnostic Quests and Accidents 21
Norman Fost
3 Learning the Bad News 39
John A. Robertson
4 Coping with Uncertainty 61
Dan W. Brock
5 Autonomy and Persuasion 80
Rebecca Dresser
6 Volunteering for Research 99
Rebecca Dresser
7 Resilience and the Art of Living in Remission 122
Patricia A. Marshall
8 The Allure of Questionable-Benefit Treatment 147
Dan W. Brock
9 Cancer Stereotypes 169
Rebecca Dresser and Norman Fost
10 Caregivers, Patients, and Clinicians 192
John A. Robertson
11 Cancer Interactions: Caring Well and Caring Badly 217
Rebecca Dresser and Patricia A. Marshall
12 Support, Advocacy, and the Selves of People with Cancer 236
Arthur W. Frank
13 Cancer and Mortality: Making Time Count 255
Leon R. Kass
14 Survivorship: In Every Expression a Crack 278
Arthur W. Frank
15 Last Words 301
Rebecca Dresser

About the author: 

Dresser is the Daniel Noyes Kirby Professor of Law and Professor of Ethics in Medicine at Washington University in St. Louis

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